A thank you to Catriona

We would like to thank our wonderful secretary Catriona Clark for generously giving her time and expertise over the last few years. Catriona has decided the time is right for her to move on with new challenges and we wish her all the very best. Catriona has helped SCA emerge from a small, local support […]

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Marathon fundraising from Dave

A big thank you to David McGregor for raising a fantastic £280 after running the Edinburgh Marathon in May. David said he was inspired to fundraise for the charity after hearing about a friend’s experience caring for their child with Sydenham’s Chorea. If you or anyone you know has been affected by this illness and […]

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UK Surveillance Project Kicks Off

We were delighted to see the first phase of the UK Sydenham’s Chorea Surveillance project kick off in November 2018. Led by a team from the University of Exeter and with input from experts around the country, this is the first study into Sydenham’s Chorea. We hope that the study will help us understand the […]

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Facebook Community Goes Global

We now have patients and families from across the globe supporting each other on our Facebook page. We have been actively encouraging people to share their stories and experiences with each other through the social media platform, and the community has grown to over 700 people. As with all rare medical conditions, it can be […]

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Over £13,000 Raised at Dinner

We are delighted to have raised over £13,000 at our fundraising dinner which took place in May.   Taking place at the Hilton Glasgow Grosvenor Hotel, the evening kicked off with a great performance from the Stellar Musical Theatre Company.   With some wonderful speakers and personal contributions from patients and parents, the night was closed by […]

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Research Update

As you may have seen from recent social media posts, the Sydenham’s Chorea Association are supporting some research into the condition, which is being undertaken by a UK wide group of professionals and experts in Sydenham’s Chorea.   Dr Michael Morton from the University of Glasgow has kindly summarised the studies for us so we can […]

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The Sydenham’s Chorea Association Incorporated as SCIO

We are delighted that our application for incorporation as a Scottish Charitable Incorporated Organisation (SCIO) was accepted by the Scottish Charity Regulator (OSCR). Our new charity number is SCO047005. This is a fantastic achievement for us, and will allow us to expand the work that we do to educate the public and professionals about Sydenham’s […]

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